“Limbo Land”

4 days before 3rd immunotherapy session – over half way through the initial 4 sessions.

One more after this one, then a scan – to see what effect the treatment has had on the tumours, and we’re hoping to see that, at the very least, they’ve not grown.

This treatment carries on working for months after you take your last dose – you can expect new side effects any time up to 6 months afterwards – that’s quite some hangover!

After the initial diagnosis and flurry of activity, which was entirely overwhelming for all of us, we’ve entered limbo land. The land that time forgot, the land where we can do nothing more than attend appointments as they come up, do what you’re told to do, and wait.

Steve is relatively well, he’s still very tired and he feels guilty about the amount of time he is resting, but his body is literally fighting for it’s life, and that is exhausting. And I genuinely don’t resent him for that.

But this waiting, this feeling of completely helplessness, of not knowing “what next” is hard. There is literally nothing we can do except sit and wait.

And I’m not great at that.