For the first time this year, Covid has really screwed with my plans. Unfortunately in a way that could affect my illness.
I was expecting to have an appointment for a new CT scan any day now so we can see if the treatment has been working. Unfortunately, due to covid, no CT scan appointments are currently being booked. There’s no indication how long this will go on for.
This means that when I have my consult at the start of January 2021 we will have no indication of whether the immunotherapy has worked or not.
I’ve been told that they’re going to assume it has been working in the absence of any other information and also because my symptoms have not got worse over the last few months.
This offers little comfort as we could be missing the fact it’s not working and moving onto new treatment sooner rather than later. I want to be confident but that niggling voice at the back of my mind is saying “what if it’s not working?”
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