Tag: anxiety

  • Another a&e visit

    I contacted the oncology team today about the chest pain and they wanted me to go to a&e to get checked out. “Better safe than sorry”

    So at 10:15 I went voluntarily into A&E. I was seen very quickly and the waiting room was empty when I arrived. Hooked to an ECG within 10 minutes and the staff took my “vulnerable” state very seriously.

    Within 20 minutes I was in the minor area and in a cubicle having another ECG with the promise of one more to come.

    I mentioned how quiet it seemed and the staff gave a nervous laugh. A&e minors is quiet but the rest of the hospital was very different. All departments and wards were at capacity.

    The doctor I saw was worried about a possible lung clot so organised blood tests and a chest x ray and she was going to see if she could get the results of my CT scan from last week. This was about 11:30.

    All tests were completed by 12pm but I got the impression I was in for a long wait for results. By this time the pain had actually gone, completely. I was lying on a slightly elevated bed and something about the position had helped.

    The doctor kept checking in and apologising about delays but couldn’t give me any ideas on time. Unfortunately with no pain to focus on my mind started wondering and worrying. What were they going to find, how long would I be here, is this another overnight stay.

    I was also acutely aware of helicopter noises at least 2 or 3 times from outside and got very nervous about being in hospital. You hear of people catching covid in hospitals more and more these days and for the first time ever I felt scared and vulnerable.

    I told the doctor at about 1.30pm that the pain had gone and I wanted to go home but she still wanted to rule out a clot. She was waiting for the CT results and if they were inconclusive she wanted to do another chest specific CT scan. This was just more delays in my mind but I understood.

    The next hour was a mental battle with my anxiety levels rocketing. I wanted to get out of the hospital and go home. For my mental well being the hospital was no longer a place I wanted to be.

    I first mentioned discharging myself at about 2.30pm and my doctor was nowhere to me seen. I was so anxious, and alone. I had no pain, I was blocking a room and I could hear it had got a lot busier outside with staff struggling to find space for new patients. I felt like I should not be there anymore.

    To her credit the doctor completely understood my predicament but did strongly reiterate that a missed blot clot could be fatal. If I was still in pain there would be no question, I’d stay as long as needed but with no pain, chest x ray and blood tests clear I just wanted to go home.

    At 3.20pm she came to me with a handwritten “discharge” note for me to sign stating I was aware of the consequences by choosing to leave. She made me promise to come back at the slightest sign of symptoms again. I was almost in tears signing that form at the relief to go home.

    It feels silly now thinking about how worked up I got in such a short space of time but when you’re just waiting with nothing to do the mind is a powerful weapon.

    Since I got home I discovered I can bring the pain/ache back by lying flat on my back or on my left slightly. Turn to the right and it goes away completely. I now think I’ve pulled a muscle in my chest by over doing things over the weekend and lifting something awkwardly.

    I’m confident my pain today is not serious as I’ve had a chest X-ray and blood tests that haven’t shown anything and getting checked out was the right thing to do but in hindsight I’d think twice before going back into a&e in a pandemic where hospitals are swamped.

    I’d think more carefully about everything that’s happened over previous days rather than just “I have a new pain, panic.”

  • Finally!

    I had my CT scan yesterday. I was hoping for some instant relief but knowing that the hospitals are so busy due to Covid and that it could still be another couple of weeks before I get my results has dampened the relief somewhat.

    However for the first time in over a week I woke up today and didn’t feel the need to just yank the duvet back over my head. In fact I actually got on with some work. Arguably more than I achieved all of last week in just a couple of hours this morning.

    Somewhat ironic when I was signed off work for another month from Monday.

    I really hope I’m coming out of this “fug” that has enveloped me for the last few weeks and has been very obvious to anyone outside looking when viewing my blog posts. The mood has gone down and kept going.

    I had another visit from one of the Phyllis Tuckwell nurses yesterday and completed another wellness questionnaire and there were no surprises that it shows I’m pretty down at the moment.

    I’m going to contact the counselling team at the hospital next week to see if talking to a stranger will make my problems disappear.

    I’ve now made it to 6pm without a nap today and while I’m very tired and will have an early night I see that as a small victory as that’s not happened for a few weeks either.

    And as I was awake this afternoon I had one of these. First time in about 20 years.

  • 1 week down

    What a shitty week. I hope the rest of 2021 gets better.

    I’ve had a week of work where I’ve basically achieved nothing as I just cannot focus and concentrate properly. I feel really guilty as I was hoping, rather naively it seems, to be able to get back into the swing of things quickly.

    I’ve seen 2-4am at least four times in the last 7 days as my mind is so busy worrying about treatment and what’s happening (or not happening) that it’s screwing with my sleep.

    And to round off the week I’ve had full on flu like symptoms and aches all over following my treatment yesterday. The first single Nivolumab treatment knocked me for six today.

    I had a temperature, I had to reach for the breakthrough pain relief for the first time since switching to Oxycodone to try and deal with everything aching. I slept from 3pm to 10pm (and am now wide awake)

    I had started the ball rolling to try and get a CT scan done privately then out of the blue I got a call today from Frimley Park hospital radiology (NHS) wanting to know if I was ok for a CT scan next Wednesday. Er.. yes!

    So while I’m desperate to know if my treatment is working I now have even more “scanxiety” knowing that I will find out next week.

    So I’m really hoping that “things can only get better” now.

  • Back at it

    4th January 2021. It’s nearly 4 months since I discovered I have kidney cancer. 4 months where the world has just been a blur, a rollercoaster of emotions and feelings and pain and tears and plans and hope and medication and appointments and phone calls.

    We’re now into a new year and I need to accept this is the new norm now. My cancer cannot be cured but right now it is something I can live with, with just a few reminders that it’s there.

    I started back at work today, albeit in a much reduced capacity for now, hopefully I will be able to get back up to full speed in the not to distant future but I won’t lie, the last few days before starting back have had my anxiety at full alert. Terrified of what’s changed, can I still work and do my job, what if I can’t?, can I stay awake? am I still useful?

    On top of this, I still haven’t had a CT scan so still do not know if the immunotherapy is working. We’re continuing treatment as if it is, with a blood test today and a consult tomorrow but without knowing if it’s working what can the consult possibly tell me. If it’s not working then we’re wasting time by not switching to a new treatment. I will have the first of the single, monthly immunotherapy treatments on Thursday afternoon.

    I just want to know if it’s working or not. My life literally depends on it.

    Anxiety is my biggest issue right now, it’s affecting my sleep, my appetite, my concentration. Work, treatment, health, all add up. I’m having to dig deep into my coping techniques and sometimes they work, other times they don’t.

    If people stopped being so stupid and selfish then we wouldn’t be having this rise in Covid numbers again and I could at least lose one of the reasons for anxiety. I see pictures on social media of friends, intelligent friends, completely ignoring social distancing. I want to scream at them “you might be killing me!” .. but what would be the point.